About US

The Global Fibrosis Foundation is a 501(c)(3) not-for-profit organization whose mission is to help educate patients, families, and the medical community about Nephrogenic Systemic Fibrosis and other organ specific fibrosing processes; to support research into prevention and treatment; and to advocate on behalf of patients.

News & Events

Corpus Pharma outlines US approval path for lead drug [for scleroderma] (Reuters)

Video: Three patients, three diseases, one process: Fibrosis

Board Member, Dan Durda, floats in zero gravity with Richard Hammond of Top Gear

European Medicines Agency Risk Assessment Committee Recommends suspension of marketing authorizations for 4 linear gadolinium chelates because of brain accumulation (.pdf)

Gloria Pennington Research Grant Awarded

Improvement of renal function through either transplantation or resolution of acute kidney injury with medical management is significantly associated with improvement of nephrogenic systemic fibrosis

Our Mission

• Educate medical, scientific, and key thought leaders on the topic of systemic and organ-specific fibrosis

• Facilitate the development of scientifically-based diagnostic and treatment standards for fibrosis

• Support relevant fibrosis research through monetary grants

• Advocate on behalf of patients with nephrogenic systemic fibrosis

• Assist other fibrosis patients with locating disease-specific resources and advocacy groups